News
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Chronicle of Philanthropy: How Small Grants Can Bridge a Gap — and Lead to Big Changes
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Inside Philanthropy: CZI Is Poised to Become the World’s Largest Private Biomedical Funder. What Might That Look Like?
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Inside Philanthropy: New Gene Therapy Trial Moves Forward Thanks to Chan Zuckerberg Initiative
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Our Rare Disease Network goes global
Meet our new international grantees and discover how they bring new perspectives to the Rare As One Network to address the global challenges of rare disease
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How technology is democratizing genetic research for rare diseases
Discover how a new genetic prevalence estimate calculator can support advancements and new insights for rare disease research.
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Amazon To Debut CZI-Supported Award-Winning Documentary, "For Love & Life: No Ordinary Campaign"
Film follows Brian Wallach and Sandra Abrevaya in their fight to remake a healthcare system for the millions of patients living with rare and neurodegenerative diseases
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Finding rare disease treatments: 2 patient leaders share their stories
Listen to two of our Rare As One partners sharing their stories and experiences navigating diagnosis and organizing their communities to accelerate research.
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Lafora disease: A ‘particularly cruel’ form of epilepsy
Learn about Lafora disease — a severe form of epilepsy that impacts adolescents — and the researchers partnering with patients to find a cure.
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How patients with rare diseases are accelerating groundbreaking research for their communities
Learn about the stories of Luke and Kim, parents and two rare disease patient leaders who are accelerating groundbreaking research to find a treatment and cure for their families.
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How a parent of a child with a rare disease built a team to find answers
A father seeking answers is teaming up with scientists to investigate one of the rarest diseases on the planet, Snyder-Robinson Syndrome.
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How an urgent call from a family in Italy changed this scientist’s career
How virologist Ivan Marazzi was inspired to change the course of his career after a pivotal conversation with a concerned father seeking answers.
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When the work is personal: how a program associate builds resources for the rare disease community
Discover how Andra Stratton uses her personal and professional experiences to support the patient-led organizations improving the lives of people affected by rare disease.